How can you help the person with stroke navigate their return to living in the community?
Helping the person with stroke re-engage back into the community is crucial in the stroke recovery process and should be addressed across the care continuum. To guide meaningful conversations with persons with stroke and their family/caregiver, start by using the Community Re-engagement Trigger Tool. This tool offers a list of reflective questions that address and support community re-engagement. These questions can help the person with stroke to identify areas of need, understand what to expect in their journey and feel a sense of control of their recovery. You can also use the tool to support the goal setting process.
Based on the needs expressed by the person with stroke and family/caregiver, ask some or all of the questions listed within those areas. You may find that you need to move between areas based on the direction of the conversation.
You can also assist with their return to living in the community through navigation support (i.e. offering guidance and education to help them access services and resources). There are four core functions related to navigation support. Click on each to learn more.
Connect
Coordinate care and connect the person with stroke to health care providers, community resources and services to ensure a comprehensive and cohesive approach to care.
This may include providing:
- personalized, up-to-date information on community resources
- the Guide for Stroke Recovery book or website link to access information and resources on an array of topics
- help with applications
- information on funding sources, and/or
- warm handovers to other care providers to ease transitions
Support
Help the person with stroke and their family/caregiver achieve their goals, promote mental and emotional health and manage their holistic needs.
For example, providing:
- active listening
- open, empathetic and non-judgmental communication
- validation to help relieve feelings of loneliness, isolation, and anxiety
- coping strategies
- resilience-building techniques
- opportunities for questions and discussions about concerns and preferences
- access to translation/interpretation services in order to support full engagement in conversation
- links to peer support or other forms of psychosocial support services
Educate
Provide personalized education to meet learning needs and goals. Education should be offered in a variety of languages and formats, address varying levels of health literacy (e.g. clear, jargon-free language), and cultural preferences. Education should be accessible for people with aphasia, those with visual, hearing and cognitive impairments (e.g. written materials, videos, journey maps, and apps).
For example, promoting:
- adherence to lifestyle modifications
- access to group education sessions
- the use of problem-solving technique
- ways to continue therapy at home
- meaningful goal setting
Empower and self-manage
Help build self-management and self-advocacy skills using a person-centred approach.
For example, empower the person with stroke by encouraging:
- problem-solving, goal setting, decision making and action planning to promote self-efficacy
- use of the Guide for Stroke Recovery and the Community Re-engagement Cue to Action Trigger Tool to:
- build knowledge
- guide self-reflection regarding their needs
- identify questions to ask about their progress and journey, and
- locate resources in the community
- engagement in all aspects related to their care and recovery
- use of tools to overcome obstacles like transportation, fear, anxiety, self-image, etc.
Additional self-management tools
You can also use the tools below to further encourage self-management.
1. Goal Setting and Action Plans
- Collaborative Goal Setting: Work with persons with stroke to set goals to regain control over their health and well-being by making changes that are meaningful to them. For example, use a problem-solving approach such as the Cognitive Orientation to Daily Occupational Performance (CO-OP).
- Action Plans: Develop personalized action plans that outline steps to take to reach their goals, including medication management, dietary changes, and physical activity.
- Cognitive Strategies: Use global cognitive strategies, such as Goal-Plan-Do-Check.
2. Regular Monitoring and Feedback
- Self-Monitoring Tools: Provide tools such as blood pressure monitors, glucose meters, and fitness trackers to use at home to monitor their health.
- Check-ins: Schedule regular follow-up appointments or virtual check-ins to review progress, provide feedback, discuss challenges, and adjust the action plan as needed.
3. Behavioral and Psychological Support
- Motivational Interviewing: Use motivational interviewing techniques to help patients explore and resolve ambivalence about behavior change. Learn techniques through the Choices and Changes: Motivating Healthy Behaviours program.
- Cognitive Behavioral Therapy (CBT): Refer patients to CBT or other counseling services if they struggle with mental health issues that impact their self-management.
- Stress Management: Teach stress management techniques such as mindfulness, meditation, and relaxation exercises.
Visit the Toronto Stroke Networks’ list of Clinical Screening and Assessment Tools to support clinical practice and post stroke care delivery.
Educational and Professional Development The following opportunities are available for clinicians working with persons with stroke to motivate change for better health outcomes and support goal setting.
- Canadian Occupational Performance Measure©
- Cognitive Orientation to Occupational Performance approachTM
- Building Capacity in Psychosocial and Hopeful Care
- Choices and Changes: Motivating Healthy Behaviours
- Guide for Stroke Recovery e-learning module and workshop